[contest below]
When we were growing up, my brother, Mike, was always small for his age, with a big ol’ soft heart that was always twice his size. He loved people, loved helping them, loved hanging around and just being a part of a group. Unfortunately, we went to a tiny school that had its fair share of bullies, and for reasons I’ve yet to understand, Mike became a target. Probably because he also had a spine and would stand up to people three times his size. If you’ve ever seen a Chihuahua nose-to-nose with a Great Dane, you’ve seen my kid brother in action.
I don’t remember a single time Mike ever complained. There were times when he was losing enthusiasm for team sports, but we thought it was more about the fact that he was so little, he didn’t have much playing time. It turned out, he was having trouble with some of the bigger guys on the team hazing/bullying the little guys. Primarily him.
We discovered this one evening when I couldn’t find him after school. He played on the middle-school (jr. varsity) football team, and they had practice at the same time that I did (dance team), which worked out well for my parents, since I could drive us home. Only, I couldn’t find him. Everyone else had left already by the time I realized something terrible was going on, and the rest of that evening is a blur. I couldn’t get into the school to call my parents (seriously, everyone had gone home), and I wasn’t sure what to do. Somehow, I managed to get to a phone and some hours later, my dad found him; he’d been beaten up by a couple of kids in school and left in a ravine in the far back acres of the school property. The father of one of the boys was on the school board, and the other one had a lot of clout. Nothing, we knew, was going to be done.
Now, some people would have dug into a shell and quit; others would have become bitter; others would have emulated the bullies and turn mean out of self-preservation. Mike didn’t do any of those. He stayed positive and upbeat. He asked if he could take Karate, and mom and dad found him a place to take his first lessons. (It wasn’t that great of a school–more of an excuse for the teacher to beat up students–but he stuck with it.) He kept taking until he grew and grew and became a black belt. He found the International Tang Soo Do Federation (ITF) and joined it so that he could take lessons from people who were real Masters at the art, and whose philosophy was more about being a peaceful person, rather than vengeance. He took it upon himself to go to our local park system and start classes for kids who couldn’t afford the more expensive schools, and taught hundreds–if not a couple of thousand–students through that system until budget cuts forced that program to end.
He kept taking lessons, progressing upward to second, then third, then fourth, and now fifth degree black belt. He has his own school, [Zachary Karate], and he’s taught–and counseled–more than 3000 kids.
Most of what he teaches is about believing in yourself. Learn to defend yourself when necessary, but also learn that your self-worth is not caught up in what other people think or say or do. Your value has nothing to do with outer expectations, but who you are, within, and how you act. I can’t even count the number of parents who’ve come back to him to tell him he saved their kids–they were depressed, lost, scared, or going off the rails with rebellion. He just has a knack for reaching them. And he’s tireless about it.
He’s also a World Champion in Sparring (2007 I think); he finally quit competing nationally because he’d never lost. Not once.
He’s got the heart of a lion, and the gentleness of a lamb. If anyone has ever needed help, he’d be there. I cannot tell you how often I’ve heard stories of him dropping everything he had going on because someone needed help.
He’s a hero, to me. Always has been.
He also has an extremely rare form of gamma/delta t-cell lymphoma. It’s extremely aggressive, and he almost died last September.
Right now, he’s in remission. We are over-the-moon about that, but the reality is, this is such an aggressive form of lymphoma, that he’s going to have to have a bone-marrow transplant in order to survive. (Actually, they don’t transplant the bone marrow any more–they transplant the stem cells. Much much much easier on the donor and way more effective on the recipient.)
Without this transplant, it is highly likely this type of lymphoma will return; it will have very likely mutated, which will make it more difficult for them to attack it with the same chemo, so it’ll be an experiment to adjust. With a transplant, however, he’d could easily live another twenty or thirty years.
What he needs, in essence, is a hero. Someone who matches the HLA cells. (Complete strangers can match. In fact, it’s far far more common for complete strangers to match. There’s a lot of biology-speak that should probably go here to explain why, but I am not a doctor, and will likely get something wrong.)
To donate stem cells in this day and age is actually fairly easy and painless. To add yourself to the donor databanks (if you’re eligible to be a donor) is so easy (and free), it’s amazing. Simply go to www.bethematch.com and look at their short checklist to see if you’re eligible; if you are, they’ll send you a FREE kit where you simply swab the inside of your cheek and send it back. That’s it. You’re in the donor database.
Now, you’re not promising you’ll do it. You’re just saying you’ll consider it if you come up as a match for someone. If you are able and willing at that time, they’ll schedule the simple procedure around your life/schedule, and the recipient’s insurance pays for the process.
You can save a life.
You might not be Mike’s hero, but you could very easily be someone’s hero. For only a few hours of your time, if you’re a match.
And someone out there will match my brother. Someone out there will enable him to keep on teaching kids, keep on being a hero. How amazing is that?
So today, I am asking you, please be a hero and do these two things:
1) tweet or FB (or both) the link: www.bethematch.com
2) check to see if you’re eligible and send off for the kit, do the swab, and turn it in.
That’s it.
I know not everyone can be a donor. There are a lot of health issues and/or age that may prevent you, but if you’d help us get people into the databanks, you could help save lives.
As a thank you (and really, there is just no way to thank you enough) — if you share the information, let me know in the comments section. If you’re eligible to do the kit, that’s fabulous, but even if all you can do is share the links and encourage others, I want to show my appreciation. All your names will go into a hat and from that, I’ll pick two winners; I have several original photographs framed on canvas and I’ll let the winners choose one of them; it’ll be signed and an exclusive to you. OR – if the winners would rather not have a signed photo (my feelings will not be hurt, truly) — you could choose a $100 gift certificate to an online store of your choice (as long as I can email the certificate.) I’ll also give away two runner-up prizes of $50 each for a gift certificate to any online store of your choice (as long as I can email you the gift certificate.) [For this contest, I have to limit entrants to US citizens. I'll do something new for the rest of you next time, I promise.]
So let me know, below, if you’ve shared the links and/or sent off for the kit. Or tell me if you’ve ever had any experience with bullies and what you think was the best piece of advice you ever got?
(Here are the photo choices…)



 





















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I tweeted: https://twitter.com/#!/daniellewarp/status/192858339326169088
I have never personally witness bullying and I was never a victim. My sister was bullied and unfortunately, our schools “no tolerance” policy really just meant no tolerance towards victims. I am horrified by all of the evidence of awful terrorism happening in schools. I have a young daughter and I do not want her to ever be subjected to this either. I would also never put up with knowing my child is harassing other kids. Bullying is not a grey area or a right of passage. It is wrong.
I am glad that your brother was able to become such a fine man despite (or because of) the horrible conduct of his piers and I hope that he finds a donor. I signed up for the registry and hopefully I can help somebody in need.
I understand knowing your younger brother is hero..and I commend his courage to over come. Both of my brothers were volunteer firefighters, and one served in the Natinal Guard and served in both Iraq wars.
I posted on FB the link and will talk it up to some of my vet friends to help spread the word. Hopefully your brother finds a match soon!
I discovered there is a donor drive next week about 12 miles from me, so I’m going to go to that. I commend your brother for being strong and not letting the bullies win. I hope he can find a match.
Your story is touching & you are a hero!
I did send off messages already about this & hope that some take up the cause to be tested.
I have had a severe disability my whole life and have had bullies approach me. I stood my ground & looked them in the eye. This did make people back off.
Jan
What a wonderful brother, man, human being! Anyone would be proud to be apart of his life!
https://www.facebook.com/profile.php?id=571760295
Facebook page is up above. If you can’t find it that way I am the only Kassandra Appel on FB, look me up!
Currently filling out the information/form on the site. Hope I can help!
sionedkla@gmail.com
Your story moved me. I’m requesting the kit so I can be tested. I sincerely hope your brother finds a match very soon.
Dear Toni – I will be honored to do this in your brother’s name. I lost my baby brother to leukemia in 1979 but while he was sick, hundreds of friends and unknown folks took the time to donate blood all around the country in his name. I’ll do it. I’m going to the site on FB and ordering the test kit. And God bless you and your brother. He is in my prayers for a recovery soon!
Just posted on my facebook page about it. And once I get home from work, I will for sure go to the site, see if I’m eligible, and send for the kit. Thank you so much for posting this important info. Your brother sounds like a wonderful guy. I have a sister who has had cancer and it is a very rare type (though former Padres player Tony Gwynn now has it), and it in virtually all cases comes back in another location at some point. This is not getting her down…she totally lives life to the fullest and I admire her so much. I hope that they find a match for your brother very soon. Maybe that match will be me.
I’ve been considering joining the database for some time and this was just the push I needed. I did indeed send away for the swab kit. Hopefully, I will be able to donate to someone. I will definitely add this to my fb wall.
I so wish I could do this for you. Unfortunately I have rheumatoid arthritis, which negates my ability to do so. I just wanted to say that I think what you are doing is brilliant. Not just for your brother but for so many people who might not otherwise have a chance!
The best to you both!
I posted to Facebook.
That’s so horrible about your brother being bullied, especially that they just left him in a ravine. You’re a much better person then me, cuz I’d have hunted them down! (Even now I want to hunt them down….maybe I should go have some coffee..or go back to bed, I’m cranky. hah)
I’m keeping your brother in my prayers. I know he’s going to get his donor.
Much Love!
ps….your pictures are beautiful!
I put the link on my Facebook page and I also went on and signed up to. Be a donor. I am just waiting for my kit so that. I can do it and send it back! I will have to wait until after I have my baby in June to be able to donate but that’s not that far away!! I’m very excited to be able to help out!!!
Toni, as you know, I’m not in the US, and I can’t personally try and help Mike, but I tweeted the link (and I don’t even qualify for the contest, so, you know I didn’t tweet for that, either!!!). Maybe someone from my feed will see it and decide to order the kit and help! My heart just goes out to your family! I know what it’s like to have wonderful little siblings you adore. My siblings are my heart, and I pray and hope that someone out there will be a match for Mike and he’ll live a long and happy life. I send love, hugs, prayers and all the best energies your way and Mike’s! ♥
I posted the link on my facebook and requested a kit which I am waiting for to do and send back in. I am very excited to be able to hopefully help someone out.
I posted on Facebook and requested my kit which I am waiting to receive. I hope your brother can soon find a match. Who knows maybe it will be one of us?
Unfortunately, my daughter is bullied at school. She is a beautiful girl and was blessed with her father’s family trait of arched eyebrows. I guess you would call them Spock eyebrows, but hers are even more extreme. She is picked on for it and also because she is really independent and has her own tastes. We’ve been battling the school for months now and nothing really seems to help. I am always sure to remind her that even though those girls may tease her now because of her looks, in just a few years they will be torturing themselves with tweezers and wax to look just like her. It doesn’t seem to make a difference though and it breaks my heart. Kids can be so cruel.
I would love to become a donor and have actually looked into it before but unfortunately I am not able to become one. But I have passed on the link and I hope many more people will join!
https://twitter.com/#!/enterthedrew/status/192971795601698816
i and all my family are registered. mike sounds like an amazing, special person.
https://twitter.com/#!/trtlgrl611/status/192986488093425665
I am not eligible to be a donor, unfortunately. I am praying for your brother and everyone else out there who needs healing.
I should be receiving my kit in about two weeks. I just squeaked on the age. I’ll tweet and FB, too, and other places. This is such an important thing. I’d meant to do it long before now. Thanks for the prod!
My dad taught me to stand up to bullies and to stand up for the kids being bullied. Lawyer Guy’s dad was the same way. We taught The Only and she stood up more than once for those getting picked on.
Zachary is a hero! I hope he finds his donor.
And FYI? I love your photos.
Gah! MIKE, not Zachary. I obviously need more coffee. *sigh*
I understand the importance of transplants of any kind, I lost my daugher needing a kidney.
I also had bome bullying when in grade school but luckily for a very short time.
reposted on FB
Thank you for sharing your brother’s story.
I am already registered and think that everyone should be!
Just posted the link on facebook. When I get home from housesitting later this month I will look into being a donor. I hope your amazing brother finds a match.
Your brother sounds like an amazing person. Im wishing him all the best. Ill definitely check out that site. I like to donate blood and if i can help some other way, thats great! I hope he finds his hero and gets better!
As for bullies, unfortunately, i know all to well about them. I was bullied when i was a kid and later, my sister became a target. She was bullied really bad. I used to have to walk her to class. She got into multiple fights and later dropped out of school. Our school, was hell. I did what i could to protect her, but her being a couple grades younger than me, it wasnt always easy. Im not one to sit by when someones being bullied. Im quiet and shy but when i see someone(s) hurting someone, i stand up for them, which made me more of an outcast. The way i looked at it, as long as i was being bullied, they were leaving others alone. Bullies are cruel and unfortunately, there out there. Hopefully one day, it stops. Sorry that your brother had it rough but he turned out amazing!
Oh, i tweeted: https://twitter.com/#!/LuvToRead09/status/193007738287177728 and shared on facebook: https://www.facebook.com/permalink.php?story_fbid=434584243221764&id=100000351741459
Hopefully, people will check it out and sign up.
Toni, this is an amazing story! You and your brother are heroes! Everyone who donates any part of themselves to help another is a hero!
Toni,
I never knew of Be The Match. Thank you for putting it out there — and YES, I both Tweeted it up, and FaceBooked it as well.
I, too, was bullied in middle school — and like your brother, I had a wonderful sister who stood up for me, and parents who made sure that I knew how to handle it, the next time it happened.
I’m always in awe of your straight-from-the soul posts, girl. ALWAYS.
xxx Josie
https://twitter.com/#!/momof3boysj/status/193041958975963137
shared your FB link (Denise Marie Stout Holcomb is my FB name if you want to confirm)
I’m not able to register because I have Crohn’s Disease (diagnosed 1994)…I’m sorry, I wanted to after the last time you wrote on FB how non-invasive it is to be put on the registry. I am registered as an organ donor on my driver’s license. I was suprised they won’t let me because I’m allowed to donate blood–my disease is in clinical remission and mild compared to many others.
I’ve prayed for your brother when I’ve read your FB posts and I hope he will continue to remain in remission.
I’ll tweet, FB and sign up, Toni.
But I want you to know that I’m not doing it for the prezzies–though all of the pictures are gorgeous!
I’m doing it because when I was younger I donated almost six gallons of blood to the Red Cross until I became preggers and subsequently lazy. I had donated every 56 days so consistantly for over two years that I became anemic. I’m sure part of this was due to being only slightly over the weight limit at the time, er, that isn’t the case now-a-days. I also worked in a hospital lab for 23+ year and when I was a student, my blood was HLA tested, but everything was so archaic back then that I doubt the information was ever transcribed into computers.
It’s time for me to get involved again.
Thank you for opening my eyes to this.
I was bullied because I was born with a cleft lip and it left a scar–I’m sure you’ve seen them in ads for the smiletrain or operationsmile. My first surgery happend when I was about 2 months old. The names people called me were horrible. I was constantly picked on. Those are the type of memories that are hard to shake.
I had a better reconstructive surgery when I was in 5th grade. Scar is less obvious, but people still notice and some still make a careless remark or use that archaic, derogatory term I won’t repeat. The worst is when I’m seen by a medical provider and I write it down in my records and instead of reading, they’ll ask how I injured my mouth. Hello–a birth defect is not an injury. Read the d*mn chart.
I don’t wear heavy makeup to try and hide the scar. I don’t dwell on having been born with a cleft lip nor living with an incurable, chronic disease (Crohn’s). Life is what you make of it. I choose to live my life.
Thank you so much for this amazing post. Of course I tweeted it and I’ve been praying for Mike ever since his diagnosis.
What a great brother you’ve got! Loved the post and will share this on FB, etc. next. I did check the registry and unfortunately I can’t donate, but I’m happy to say my daughter recently added herself to the registry.
Wishing you, your brother and your family all the best!
Toni, this is an amazing, moving, and unforgettable post! Mike is such a hero and I pray he finds the match! I’ve tweeted and am off to check out the FB site. xo
Everyone, thank you SO SO SO much. You have all brought tears to my eyes, and your help and support mean so incredibly much to me.
We’re having some trouble with responding in the comments and I’m having trouble getting my individual responses to post at all. We have someone looking at that to fix it, and when I get back to the other computer this evening, I’m going to try to respond again individually. Just please know that you’ve touched my heart and you are all a treasure. Truly.
Hi Toni,
Your brother’s story is so inspiring. Thank you for sharing it with all of us. Your family is in my thoughts.
My husband has been in remission for 6 years next month from NHL Large B Cell. We celebrate the day as a second birthday.
I thought I was on the registery, but apparently not so I registered.
My thoughts and prayers are with your brother and your family!
You’re lucky to have a brother who is so caring and giving. My prayers are with you.
I tweeted: https://twitter.com/#!/darcy1956/status/193077344687235073
Toni – I shared your post on FB. That seemed to be the easiest way to forward the message.
I send you all the best wishes that you find a donor for your brother. Suzanne Brockmann ran a similar campaign for a Navy SEAL several years ago and it worked. These things do happen.
Your images are gorgeous.
Best wishes, and prayers, for your brother.
The link does not show medical exclusions but a cancer survivor presumably is not considered.
Sounds like you have an amazing brother. I myself havenever been bothered by bullies but my kids all have gone through it once or twice. Bullying is a horrible thing and i am glad it is getting the attention it needs to.
Unfortunately I am unable to be a donordue to health issues. I thought I was free and clear. Electronically signed the form and THEN it came up and said I was not eligible. Honestly it is disappointing. My life was saved through blood transfusions from donors so it would have been nice to possibly help someone.
BTW, I shared it on my FB page.
I shared the link on Facebook, and tweeted it. My guy and I are both registering, as long as we’re considered eligible. (Still need to have him check the list, and I may not be eligible.)
Your brother’s in my prayers. I hope that a match is found soon.
https://twitter.com/#!/Modokker/status/193116204800544768
Tweeted and added to Facebook via tweetdeck.
Your brother is a inspiration. Seriously what a wonderful person with big heart and beautiful spirit. I hope he can get what he needs to go on inspiring kids and families. He’s a hero. I hope you will let him know i said that too. Amazing. He would not be who he is without good families ties backing him. Sounds like you have a wonderful family.
Lisa B
I swear I would never have made it through elementary school if not for my big brother facing down the bullies. Your brother is amazing. I have shared a link to Be the Match on my Facebook page. I have been in the registry for 20 years now. I have been called for second level match testing three times but wasn’t the closest match. If I was I would donate in a second. I hope he finds his match . . . fingers crossed.
I cannot, due to health reasons. But I will be spreading this link amongst my friends and family.
Your brother is an amazing person. I truly, truly hope he finds his match.
Will send the link on to those in my contact list. My kids will be sure to spread the word, too.
I’ll be checking out the Be the Match link as soon as I finish here.
Love your brother’s attitude about bullies. For those who have loved ones who struggle with bullies in school – keep talking with school leaders about it. As a teacher, I know that we can make school bullies stop – it takes some work, but it can be done.
Mike is in my thoughts and prayers. He is a hero.
I visited the site and unfortunately, I do not meet donor guidelihes. I do not use FB but will send information about Be The Match along to email contacts.
Thanks, Toni, for a wonderful column. What a good sister you are.
The wonderful thing about heroes is that they come in so many shapes and forms, and actions. One word or look can leave such an impact on another person’s life. Thank you for raising awareness.
Posted on FB. And in case I don’t win, any chance I could buy one of those prints off you?
I’ve been in the marrow donor registry since sometime in college (so 12-16 years now?) because they were signing us up at a blood drive, which was brilliant. I always have this tiny bubble of sadness when I get email from them and it’s just a newsletter and not a request to donate. Weird, I know, but since it’s something I can give at so little cost to me that is worth SO MUCH to someone else, I’m always hoping to be chosen for that honor. Hubby sent in his swabs last week, so we’re both ready and waiting.
As for bullies, I was severely bullied in school, including several months of sexual harassment which the teachers ignored because my harasser and his friends would carry knives to school. I think the best thing I gleaned from being bullied is that you shouldn’t let them change you. Stand true to yourself, because if you change who you are to fit in the bullies win, even more so than when they’re beating you up. And that the formerly bullied are the best defense against the current bullies. We’re not small and afraid any more, and we should see it as our DUTY to defend those that are.
Toni- this post made me cry! What a wonderful hero you have. I posted the link to my facebook page, but have no idea how to copy or add the link here. I am checking in to being a donor, and asking relatives to do the same.
I was never bullied in school. I grew up in a private Christian school where we were all like family. My oldest son however, does not have that luxury and is being bullied at this middle school. Thirteen is such a hard age to be in 2012! I wish I had some magic answers for him and it completely breaks my heart when he comes home after a miserable day. We are using the resources at school to stop the bullies. There are a few older kids that pick on a few younger kids. About 2 weeks ago it came to a head and there was a shoving and shouting match. Lots of kids were suspended, on both sides. Fortunately my son was at a doctor appointment and not there for this! It has brought the bully issue to the surface and I have faith in the school staff to handle it correctly. I still wish there was a magic wand I could wave to make it all go away for Kyle. I love him so much!
Thanks for the informative and important post. Your brother and the rest of your family will be in my prayers! Fingers crossed that a match is found.
Tweeted and posted to FB.
I’ll send away for the kit when I get home from this hair appointment.
FGBVs for you and yours, Toni.
I ordered the kit. Thank you for reminding me about this incredibly important opportunity, Toni. I kept intending to register, as my oldest has a friend whose son has a disorder (I can’t remember what its called) that requires bone marrow transplants (or stem cells, as you mentioned)
Anyway, I did tweet and post to my FB and I wasn’t going to post a comment because I didn’t want to seem to be doing it just for the opportunity to win something – but I wanted you to know, and your brother will be in my prayers.
I can’t register, Tony – I’ve got health issues. But I will tweet and FB betthematch. That much I can do. Good luck. And FGBVs for a positive match for your brother.
Silver posted this on her blog today and I popped over to read it.I shared the link on my FB, but sadly, I can’t donate because of a couple of health reasons. This has bothered me for years because I am also an organ donor.
As for bullies? I survived because of books. I read all the time. My daughter was also bullied and had emotional problems and I put her into Karate when she was younger- Steve LaValle’s East Coast Karate. When we left there to move (where we didn’t find a school we liked) she was a 2nd degree brown, getting ready to test for red (one below Black). In her new school she was bullied from the start- by a girl half her size! My daughter is now 5’8″ or so. She never once turned her hand against the other girl except to defend and protect herself. It finally came to a head when the school refused to do anything because they were both under 16 and no weapons were used. I gave her my permission, in front of the principal, the school cop and everyone else who was there to defend herself as she needed.Boy were they upset and I didn’t care. The day the other girl came back, she ran up behind my daughter to shove her into a wall and mine just picked her up and threw her. That was that. They both got suspended (I really didn’t care) and the other girl never came near her again. I had warned them. They didn’t believe me. Now at 27, she won’t put up with bullying from or by anyone.